CONTENTS Chapter Page ABOUT THIS BOOK .A1 to A12 PART 1 WORKING WITH THE CHILD AND FAMILY: Information on Different Disabilities 1. Introduction to PART 1: Making Therapy Functional and Fun .3 to 8 A. Where Do We Start? 2. Ideas for Sharing Information from This Book .9 to 12 3. Prevention of Disabilities .13 to 20 4. Examining and Evaluating the Disabled Child .21 to 42 5. Simple Ways to Measure and Record a Child’s Progress .43 to 50 B. Recognizing, Helping with, and Preventing Common Disabilities 6. Guide For Identifying Disabilities .51 to 58 7. Polio .59 to 76 8. Contractures: Limbs That No Longer Straighten .77 to 86 9. Cerebral Palsy (difficulty with movements because of brain damage) .87 to 108 10. Muscular Dystrophy: Gradual, Progressive Muscle Loss .109 to 112 11. Club Feet, Flat Feet. Bow Legs, and Knock-knees .113 to 118 12. Common Birth Defects (cleft lip. extra or joined fingers, incomplete limbs, and arthrogryposis) .119 to 124 13. Children Who Stay Small or Have Weak Bones (includes Rickets.
D. Helping Children Develop and Become More Self-reliant 36. Feeding . 319 to 332 37. Dressing .333 to 336 38. Toilet Training .337 to 344 39. Bathing (includes Care of the Teeth and Gums) .345 to 348 40. Ways to Improve Learning and Behavior .349 to 364 41. ‘Learning Disabilities’ in Children with Normal Intelligence .365 to 366 E. Exercises and Techniques 42. Range-of-motion and Other Exercises .367 to 392 43. Crutch Use, Cane Use, and Wheelchair Transfers .393 to 398 PART 2 WORKING WITH THE COMMUNITY: Village Involvement in the Rehabilitation, Social Integration, and Rights of Disabled Children 44. Introduction to PART 2: Disabled Children in the Community .401 to 404 45. Starting Village-based Rehabilitation Activities .405 to 414 46. Playgrounds for All Children . 415 to 426 47. CHILD-to-child: Helping Teachers and Children Understand Disabled Children .427 to 454 48. Popular Theater .455 to 462 49. A Children’s Workshop for Making Toys .463 to 476 50. Organization, Management, and Financing of a Village Rehabilitation Program .477 to 484 51. Adapting the Home and Community to the Needs of the Disabled .485 to 490 52. Love, Sex, and Social Adjustment .491 to 496 53. Education: At Home, at School, at Work .497 to 502 54. Work: Possibilities and Training .503 to 514 55. Examples of Community-Directed Programs .515 to 522 PART3 WORKING IN THE SHOP: Rehabilitation Aids and Procedures 56. Introduction to PART 3: Making Sure Aids and Procedures Do More Good than Harm .525 to 532 57. A ‘Shop for Making Aids’ Run by Disabled Villagers . 533 to 538 58. Braces (Calipers) . 539 to 558 59. Correcting Joint Contractures (with casts or braces) . 559 to 564 60. Correcting Club Feet (with tape or plaster casts) . 565 to 568 61. Homemade Casting Materials . 569 to 570 62. Developmental Aids (for lying, sitting, standing, balance, and communication) .571 to 578 63. Walking Aids (bars, crutches, walkers, canes) . 579 to 588 64. Decisions about Special Seats and Wheelchairs . 589 to 606 65. Adaptations for Wheelchairs and Other Sitting Aids . 607 to 612 66. Designs for 6 Basic Wheelchairs . 613 to 624 67. Artificial Legs . 625 to 636 REFERENCE (Where To Get More Information) .637 to 642 LIST OF SPECIAL OR DIFFICULT WORDS Used In This Book .643 to 644 INDEX .645 to 654.
THANKS This book has been a cooperative effort. Many persons have contributed in different ways. Some have helped to write or rewrite different sections; some have criticized early drafts; some have used it in their programs and sent us feedback; some have sent original ideas or technologies that we have tested and then included. In all, persons or programs from 27 countries on 6 continents (North and South America, Africa, Asia, Europe, Australia) have contributed.
ABOUT THIS BOOK A TRUE STORY: CRUTCHES FOR PEPE A teacher of village health workers was helping as a volunteer in the mountains of western Mexico. One day he arrived on muleback at a small village. A father came up to him and asked if he could cure his son. The health worker went with the father to his hut.
When these crutches were finished, Pepe’s father tested them by putting his own weight on them. They supported him easily, yet were lightweight. Then Pepe tried them. At first, he had trouble balancing, but soon he could hold himself up. By afternoon, he was walking with the crutches! But they rubbed under his arms.
HOW THIS BOOK WAS WRITTEN The story of Pepe’s crutches is an example of the lessons we have learned that helped to create this book. We are a group of village health and rehabilitation workers who have worked with people in farming communities of western Mexico to form a ‘villager-run’ rehabilitation program. Most of us on the rehabilitation ‘team’ are disabled ourselves.
HOW THIS BOOK DIFFERS FROM OTHER ‘REHABILITATION MANUALS’ This book was written from the ‘bottom up’, working closely with disabled persons and their families. We believe that those with the most personal experience of disability can and should become leaders in resolving the needs of the disabled. In fact, the main author of this book (David Werner) and many of its contributors happen to be disabled. We are neither proud nor ashamed of this. But we do realize that in some ways our disabilities contribute to our abilities and strengths.